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Hay-Wells Syndrome
This cutaneous condition: known as Hay-Wells Syndrome, can be Discussed here.
Persons finding themselves or loved ones suffering because of Hay-Wells syndrome (AEC syndrome, Ankyloblepharon filiforme adnatum-ectodermal dysplasia-cleft palate syndrome, Ankyloblepharon-ectodermal defects-cleft lip and palate syndrome, Ankyloblepharon-ectodermal dysplasia-clefting syndrome) may like to share how they cope in order to help others world-wide searching for experiences.